Pediatric GIST Tissue
Due to the rarity of GIST, it is difficult for researchers to obtain tissue for reseach. Tumor tissue is one of the most important resources that a laboratory researcher can have.
The NIH is conducting ongoing research into pediatric GIST. Patients are encouraged to donate tissue to the NIH research project if possible. Interested patients (or parents if the patient is a minor) can contact the NIH directly for more information about donating tissue.
Why tumor samples are so important for research (NIH website).