Pediatric GIST specialists
Because pediatric GIST is so rare, there are few true Pediatric GIST specialists. In June, 2008, the first gathering of pediatric GIST experts occurred at the first National Institutes of Health (NIH) Pediatric GIST clinic. The specialists included national leaders in the field of GIST and Pediatric GIST. This included geneticists, medical oncologists, pediatric oncologists, pediatric surgeons, pathologists and endocrinologists.
For local treatment, it is important to find doctors experienced in GIST. This experience comes in two basic types; experts in pediatric cancers and experts in adult GIST cancer. Both have unique perspectives and experiences. The best approach might be when doctors from both fields collaborate with each other.